tetralogy of fallot...TOF. that's what's wrong with little weston's heart. kind of. the only difference is that instead of a smaller pulmonary valve, he has no pulmonary valve. it's been a long day so i'll save details for later.
long story short, it's more complicated than we thought. surgery can still fix it, but he'll have lots of surgeries his entire life and his lungs are compromised as well.
the spectrum of possibilities of what can still happen is pretty broad, so we'll know more after he's born and we see how his lungs react to coming off the ventilator.
everyone i've spoken to and even people i haven't have let me know they are praying for him and our names are on lots of prayer rolls. we can feel your prayers and we love you for it. we'll keep you updated :)
and p.s. apparently this guy has the same thing...you can even see his scars. and the weird thing is, i totally saw homeboy in the airport a couple of weeks ago.
oh wow, i've just been catching up, i'll keep you guys in my prayers for sure! and if the flying tomato or whatever his nickname is has this, then i'm sure little weston will be just fine and some kind of crazy professional athlete. :) i'll email you an invite to my blog...
ReplyDeleteCallie...Keeping Weston in our prayers...Paul, Nicki, Kate
ReplyDeletecallie, we will definitely pray for your family! let me know if you need anything!
ReplyDeleteThanks for the update.
ReplyDeletePraying every day for this little guy...and for his strong and amazing parents!
Love.
oh, i can't believe what this must feel like. all i know is this little guy is so lucky to be coming to your family- couldn't ask for a better mom, dad, and siblings. please let us know if there is anything we can do. we will be thinking of you.
ReplyDeleteI've been out of the 'blogging' world for a few months and didn't know any of this about Weston. I'm so sorry that I've talked to you and had no idea! We will definitely keep you in our prayers and will be thinking of your family. If there's anything you need, you know I'm just down the street. Please call!
ReplyDeleteCallie,
ReplyDeleteWe are praying for little Weston every morning and night. I talked to Camille today about specific things you may need. I just want you to know that he is specifically in our prayers right now and we are thinking of you and him and trying to think of things you will need. You are a woman of strength. I love you.